manchester KC group
Moderators: Sweet, mike scott
- Matt Allgood
- Committee
- Posts: 47
- Joined: Wed 11 Jan 2006 1:56 pm
- Location: London
Re: manchester KC group
Any luck in recruiting members?
- Steven Williams
- Forum Stalwart
- Posts: 316
- Joined: Tue 18 May 2004 10:48 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: North Lancashire
Re: manchester KC group
[quote="Steven Williams"]If you do could you say so on this thread and then TOGETHER we maybe able to get something up and running again.
If anyone does not feel comfortable coming forrward on this thread can I suggest that you pm me. [/quote]
[quote="Matt Allgood"]Any luck in recruiting members?[/quote]
I've received two response to my above statement Matt. An expression of interest from Space Cadet and another PM just over a week ago from a Manchester student to which I promptly replied and provided my home telephone number but no response to date.
At the last Manchester KC meeting Mike arranged I recollect there were approaching 20 there.
Maybe KCers in the north west do not want or need a KC support and self help group?
If anyone does not feel comfortable coming forrward on this thread can I suggest that you pm me. [/quote]
[quote="Matt Allgood"]Any luck in recruiting members?[/quote]
I've received two response to my above statement Matt. An expression of interest from Space Cadet and another PM just over a week ago from a Manchester student to which I promptly replied and provided my home telephone number but no response to date.
At the last Manchester KC meeting Mike arranged I recollect there were approaching 20 there.
Maybe KCers in the north west do not want or need a KC support and self help group?
- Anne Klepacz
- Committee
- Posts: 2287
- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: manchester KC group
Steve
I am in touch with someone who is interested in trying to revive the Manchester group. It would be good to get something going again, but with two attempts that fizzled out, we need to make sure we get it right this time. It's a big committment taking on the running of a local group, and most people lead busy lives AND sometimes have to contend with times when they have problems with their own KC. So not something to be undertaken lightly. When there's anything definite to report, I'll certainly post something here.
Anne
I am in touch with someone who is interested in trying to revive the Manchester group. It would be good to get something going again, but with two attempts that fizzled out, we need to make sure we get it right this time. It's a big committment taking on the running of a local group, and most people lead busy lives AND sometimes have to contend with times when they have problems with their own KC. So not something to be undertaken lightly. When there's anything definite to report, I'll certainly post something here.
Anne
- Steven Williams
- Forum Stalwart
- Posts: 316
- Joined: Tue 18 May 2004 10:48 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: North Lancashire
Re: manchester KC group
Hi Anne,
Thanx for the clarification.
I dont really see it being a big commitment especially if there is the will and support to have a KC self help group. There is nothing in the north west. Having quarterly or monthly/bi monthly meetings is not a big thing. Biggest challenge imo is finding a suitable venue.
I dont know why the first attemt with a Manchester group failed but having attended all the Manchester meetings on the second occasion I have an informed opinion. I think that you witnessed that problem when you kindly made the trip to support Mike at the first meeting, but suspect that due to the fear of speaking the truth your'll remain silent.
I dont know if you are speaking for Mike and that he has indeed resigned.
"we need to make sure that we get it right this time"
The key question then is why did it go wrong on the last two attempts?
I certainly think that Mike did an excellent job.
ATB
Steve
Thanx for the clarification.
I dont really see it being a big commitment especially if there is the will and support to have a KC self help group. There is nothing in the north west. Having quarterly or monthly/bi monthly meetings is not a big thing. Biggest challenge imo is finding a suitable venue.
I dont know why the first attemt with a Manchester group failed but having attended all the Manchester meetings on the second occasion I have an informed opinion. I think that you witnessed that problem when you kindly made the trip to support Mike at the first meeting, but suspect that due to the fear of speaking the truth your'll remain silent.
I dont know if you are speaking for Mike and that he has indeed resigned.
"we need to make sure that we get it right this time"
The key question then is why did it go wrong on the last two attempts?
I certainly think that Mike did an excellent job.
ATB
Steve
- Steven Williams
- Forum Stalwart
- Posts: 316
- Joined: Tue 18 May 2004 10:48 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: North Lancashire
Re: manchester KC group
BTW aqnyone who wishes to see a NW KC group up and running are invited to contribute here:-
viewtopic.php?f=1&t=5244
viewtopic.php?f=1&t=5244
- Susan Mason
- Forum Stalwart
- Posts: 414
- Joined: Sat 24 Jan 2004 11:27 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Bolton Lancashire
Re: manchester KC group
I would try to attend if there were meetings in my local area. Travel is not easy although with enough notice should be ok.
Susan
Susan
- Lewis-W
- Contributor
- Posts: 35
- Joined: Wed 05 Sep 2012 8:54 am
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Wigan, UK
- Contact:
Re: manchester KC group
Sorry for reviving a pretty old topic - just thought I'd mention that I live in the NW and would be interested in attending any local meetings if they are still taking place.
There haven't been any posts here for a good few years, but I think it'd be great for people suffering from KC in the North West to be able to meet up and discuss/share experiences.
There haven't been any posts here for a good few years, but I think it'd be great for people suffering from KC in the North West to be able to meet up and discuss/share experiences.
- Steven Williams
- Forum Stalwart
- Posts: 316
- Joined: Tue 18 May 2004 10:48 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: North Lancashire
Re: manchester KC group
"I think it'd be great for people suffering from KC in the North West to be able to meet up and discuss/share experiences"
Totally agree with you Lewis. I'm following this thread with interest. Good luck
Can anyone inform me how you get BB Ccde and Smiles to on settings working on here.
Totally agree with you Lewis. I'm following this thread with interest. Good luck
Can anyone inform me how you get BB Ccde and Smiles to on settings working on here.
Re: manchester KC group
I would be interested in being part of a Manchester group. I've only just joined the forum having recently been diagnosed with KC.
- Anne Klepacz
- Committee
- Posts: 2287
- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: manchester KC group
Hello and welcome to the forum. If you'd like our information booklet about KC and a conference DVD, just e-mail your postal address to
anne@keratoconus-group.org.uk and I'll send them to you.
Anne
anne@keratoconus-group.org.uk and I'll send them to you.
Anne
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