Member Stories
Having KC is not disastrous!
I am now 80 and was diagnosed with KC in 1978. Used hard contact lenses from 1965 (not gas permeable in those days) until right
29-Mar-2026
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Category: Member Stories
Information
Vital NHS Contact Lens Service for Keratoconus Patients Set to Close
UPDATE 1st April 2026: After a long and often frustrating journey, I’m incredibly relieved and grateful to say that the NHS contact lens service has
24-Feb-2026
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Member Stories
Keratoconus in my teens/twenties
Around the age of 15/16 I was diagnosed with keratoconus. I was a glasses wearer, but I was really struggling to see anything in much
18-Mar-2025
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Member Stories
Dale’s Story
Without and With Lenses Hi I’m Dale, I have Down syndrome, I’m autistic, I can be extremely challenging because the world doesn’t suit me very
26-Feb-2022
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Member Stories
Matti’s Story
“I have had suspicions that you might have Keratoconus in your left eye” In the early 1990s I went to see my optometrist back home
1-Feb-2022
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Member Stories
David’s CXL Story
In December 2020 I underwent cross linking at Birmingham Midland Eye Centre. The procedure was on both of my eyes and I had the operation
18-Feb-2021
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I am a parent of a Keratoconus sufferer
So I am a parent of a Keratoconus sufferer. Since she was diagnosed at 16 I have struggled to understand what my daughter goes through
14-Sep-2020
4 Comments
The Man with the Funny Shaped Eyes
A while ago I wrote this, just really to get it off my mind and keep it down to look back on in the future,
16-Oct-2017
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Dougie’s Story
I’m 27 and live in edinburgh and was originally told I had KC when I was 12 years old I can remember it well as
14-Oct-2017
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Richard’s Story
I was first diagnosed with KC around 11 years ago, but I really didn’t think that much about it at the time, and it hardly
15-Oct-2016
1 Comment