The date of our next online ‘drop-in’ meeting is Thursday 12th November at 7.00pm Our drop-in Zoom chats provide a good opportunity for the newly diagnosed to meet seasoned travellers…
Saturday 3rd October at 11am Our Autumn speaker meeting is at the Moorfields Education Hub, Ist Floor, 15 Ebenezer Street, N1 7NP (the hub is opposite Moorfields main hospital – cross…
The date of our next online ‘drop-in’ meeting is Wednesday 19th august at 7.00pm Our drop-in Zoom chats provide a good opportunity for the newly diagnosed to meet seasoned travellers…
Orginal Article from INSIGHT Health Data Research Hub Diseases affecting the anterior segment, the front part of the eye, are among the leading causes of visual impairment and blindness globally,…
By Dr Waheeda IllahiBased on Dr Illahi’s talk at the Keratoconus Group AGM For many people living with keratoconus, the focus is understandably on vision: diagnosis, contact lenses, cross-linking, hospital…
On 4th October, Johnny Sloss will be lacing up his running shoes and taking on the AJ Bell Great Scottish Run, all while raising funds for Keratoconus Group. We’re incredibly…
We will be meeting in 8th July 2026 at 11am Venue – The Vision Sciences Building (co-located with Aston University Eye Clinic) Aston University Campus, Aston Street, Birmingham B4 7ET…
THIS DATE HAS NOW BEEN POSTPONED AND A NEW DATE WILL BE ANNOUNCED SOON The date of our next online ‘drop-in’ meeting is Wednesday 24th June at 7.00pm Our drop-in…
UPDATE 1st April 2026: After a long and often frustrating journey, I’m incredibly relieved and grateful to say that the NHS contact lens service has now been reinstated. As many…
We’re delighted to share some exciting news with our members and supporters: we have a runner in the 2026 London Marathon fundraising for the Keratoconus Group. New member Tosin Adebanjo…
Living with keratoconus can sometimes feel isolating. Whether you’ve been recently diagnosed, are managing changes in your vision, or are supporting someone you care about, it helps to know you’re…
The date for the next meeting is Thursday 30th April at 7.00pm Our drop-in Zoom chats provide a good opportunity for the newly diagnosed to meet seasoned travellers and discuss…
The next meeting will be on Thursday 26th March at 11am Venue – The Vision Sciences Building (co-located with Aston University Eye Clinic) Aston University Campus, Aston Street, Birmingham B4…
Keratoconus is often described as an invisible condition. From the outside, our eyes can look perfectly healthy, while the way we see the world is anything but. Explaining that experience…
Saturday 28th March at 11am Our AGM and guest speaker meeting is at the Moorfields Education Hub, Ist Floor, 15 Ebenezer Street, N1 7NP (the hub is opposite Moorfields main hospital…
Keratoconus is a progressive eye condition that can make everyday classroom tasks more challenging. With the right adjustments, students can continue to learn confidently and participate fully in school life.…
The holiday season is a time for celebration, travel, cosy evenings and bright decorations. For people living with keratoconus, this time of year can sometimes bring extra challenges. Cold weather,…
Our drop-in Zoom chats provide a good opportunity for the newly diagnosed to meet seasoned travelers and discuss all things KC. Anyone interested in Keratoconus is free to join us.…
Epioxa Provides the Ophthalmic Community and Patients with the First and Only FDA-Approved, IncisionFree, Topical Drug Therapy for Keratoconus Epioxa Represents a Novel, Groundbreaking Therapy for Patients Afflicted by This…
Ken Pullum gave an interesting talk to the Keratoconus Group outlining his ideas for addressing the increasing problem of waiting times for appointments. Not only is this obviously disruptive to…
By Dr Sangeetha Rao Author’s note:Dr Sangeetha Rao, an Ophthalmologist and new member of the Keratoconus Self-Help and Support Group, shares her reflections from the 2025 Specialist Keratoconus & Scleral…
University of Liverpool researchers receive £2.4 million to advance a minimally invasive treatment for keratoconus, aiming to improve patient access and reduce NHS costs Researchers at the University of Liverpool…
By Peter Field HERTFORD UK, APRIL / MAY 2025 at The BEAM theatre complex There is something quite magical when you arrive at Hertford on a warm, sunny, sky blue…
The National Institute for Health and Care Research (NIHR) have awarded Dr. Shafi Balal a prestigious Doctoral Fellowship at University College London (UCL). The NIHR Doctoral Fellowship is a full-time award that…
By Daniel Morgan-Williams, Founding Director of Visualise Training and Consultancy Working in the workplace adjustment space, we see this quite often. An employee requests an adjustment to remove a barrier,…
Our autumn speaker meeting will be held at the Moorfields Education Hub 1st Floor 15 Ebenezer Street, N1 7NG (the hub is opposite the main hospital). Cross City Road and go up…
Keratoconus (KC) doesn’t just affect your vision – it can also impact your daily life and emotional well-being. Distorted eyesight from KC can interfere with tasks like reading, driving, or…
ABDO have made us “Charity of the Month”. You can read their article here
At our AGM and Speaker meeting both Dr Abass and optometrist Lynn White, carefully explained the progress of their work to find a solution for those of us who have…
Investigator Initiated, Prospective Study of Xenia Corneal Lenticule This information is provided directly by researchers and we recognise that it isn’t always easy to understand. We are working with researchers…
We are pleased to report that Dr Ahmed Abass has published his paper which we are proud to have co-sponsored with Fight for Sight. Dr Abass has kindly provided the…
It is with great sadness that we announce the death of Mike Oliver, co-founder of the Keratoconus Group, long time trustee and ex Chair of the trustees. Mike’s contribution to…
At our AGM we were treated to a talk by Emma McVeigh about a new project led by Dan Ehrlich (retired Head of Optometry at Moorfields). Moorfields is funding an…
As you can see from the Government website (Eye conditions and driving), Keratoconus has been removed from the list of notifiable conditons. This change was made after consultation with the…
University of Liverpool biomedical engineer, Dr. Ahmed Abass, had been awarded funding from Fight for Sight and Keratoconus Group UK to develop a new type of spectacle lens that can correct irregular astigmatism…
Recently a number of our members have experienced problems when supplied with new scleral contact lenses. Such was the concern that we asked members for feedback in our Spring 2022…
Moorfields have a new service to access it visit: https://www.moorfields.nhs.uk/service/accident-emergency Scroll down to this tab and follow the instructions:
At our November Coffee Morning, we were treated to a very thought-provoking talk from Tracy Long-Sutehall. Tracy has been very concerned by the shortage of available corneas for transplant surgery.…
Sadly, our president passed away on Wednesday 12th October 2022 Mr Buckley has been a keen supporter of our charity. His involvement started in the first year of our inception…
A Moorfields and UCL Institute of Ophthalmology team led by Daniel Gore have developed a ‘prediction calculator’ to give keratoconus patients a personalised risk calculation to make informed decisions about…
Members will remember the talk given by Professor Alison Hardcastle at our AGM in 2019, updating us on her work as part of the Genome-Wide Association Studies (GWAS). The talk…
At our previous Zoom coffee morning, we were treated to an excellent talk by Howard Mailes, a PhD candidate at UCL. He was talking about his research into using artificial intelligence…
For the past few years our group has been working with health professionals in Wales where until now, apart from very exceptional cases, it has not been possible to have…
A clinical trial in 60 keratoconus patients aged 10-16 years old, most of which were based at the NIHR Clinical Research Facility at Moorfields Eye Hospital, found that a treatment for keratoconus,…
Many of our members have been following this study. It has been carried out University College London (UCL), Moorfields, Kings College London and other national and international collaborators and is…
We would like to thank Sight and Sound for hosting the following webinar for us specifically tailored towards keratoconus. The webinar looks at four scenarios taking people at different stages…
Reflections from lockdown by Caroline Condillac Contemplating the new working environment from a Keratoconus perspective has been interesting Positives We are good at washing our hands and being resilient For…
Keratoconus and cross-linking with Dr Vijay Anand MCOptom A good friend and supporter of our group Dr Vijay Anand was recently interviewed on the College of Optometrists’ podcast, about the…
Eye Rubbing is believed to have a significant affect on the development of Keratoconus. This YouTube clip is interesting in that it suggests that adults need to avoid eye rubbing…
Our very own Mike Oliver was interviewed today by VI Talk for their podcast. Mike spoke for 17 minutes and hit all the necessary points to inform listeners about Keratoconus.…
University of Liverpool biomedical engineer, Dr Ahmed Abass, has been awarded funding from Fight for Sight and Keratoconus Group UK to develop a new type of spectacle lens that can correct irregular astigmatism for keratoconus…
This is a great new website divided up into four sections: Patients Practitioners Anatomy of the Eye/FAQ Professionals and Industry Associations The navigation is well laid out and it is…
A researcher from the University of Nottingham has discovered a possible alternative to traditional antibiotics for treating corneal infections. In his project, Fight for Sight funded researcher Dr Darren Ting…
The UK Cross-linking Consortium was established in 2013 with funding from the Medical Research Council and is dedicated to the dissemination of information about keratoconus to ophthalmic surgeons, vision researchers…
On World Sight Day (10 October), NHS Blood and Transplant needs to dispel five common myths around cornea donation and encourage people to give the gift of sight. One in…
The Medical Research Council (MRC) has awarded Cardiff University’s School of Optometry and Vision Sciences a grant valued at £2.4 million for a large scale study on the cornea. The…
Researchers at the University of Southampton and clinical partners across England are leading a new project aimed at helping to tackle a shortfall in the number of people willing to…
Lens hygiene and care is crucially important. To get the message across a new campaign has been launched and you can find out about it here. In addition Moorfields has…
The Sight Advice FAQ answers questions about living with sight loss, eye health or being newly diagnosed with a sight condition. This includes those who are supporting people through their…
Fight for Sight is working to raise awareness of the importance of eye donations after research has found that eyes are the organ that people would be the least likely…
This is an interesting article published by the National Keratoconus Foundation in America: For many years, it’s been long stated that keratoconus occurs in one person in every 2,000. In an…
Visualise is a charity that helps organisations find the answers that make their services more inclusive and accessible to people with a visual impairment and other disabilities. As leaders in…
The first human corneas have been 3D printed by scientists at Newcastle University. It means the technique could be used in the future to ensure an unlimited supply of corneas.…
Moorfields have carried out 4,620 Corneal Collagen Crosslinking treatments and have recently published their results. View the results.
This Report on photochemical corneal collagen cross-linkage using riboflavin and ultraviolet A for keratoconus and keratectasia was issued in September 2013. Read Full Report
While there have been a number of studies demonstrating the effectiveness of CXL in adults and the procedure has been approved by NICE for use in the NHS, much less…