The Next Meeting – Thursday 4th December 2025 at 7pm
Our drop-in Zoom chats provide a good opportunity for the newly diagnosed to meet seasoned travelers and discuss all things KC. Anyone interested in Keratoconus is free to join us.…
Sight Village London 2025 – NEW VENUE
Sight Village is the UK’s leading exhibition and an integral part of the blind and low-vision landscape, attracting thousands of visitors eager to explore the latest technology, products, and support…
Glaukos Announces FDA Approval of Epioxa™
Epioxa Provides the Ophthalmic Community and Patients with the First and Only FDA-Approved, IncisionFree, Topical Drug Therapy for Keratoconus Epioxa Represents a Novel, Groundbreaking Therapy for Patients Afflicted by This…
Waiting times for Keratoconus
Ken Pullum gave an interesting talk to the Keratoconus Group outlining his ideas for addressing the increasing problem of waiting times for appointments. Not only is this obviously disruptive to…
Reflections from the Specialist Keratoconus & Scleral Lens Symposium, Hertford 2025
By Dr Sangeetha Rao Author’s note:Dr Sangeetha Rao, an Ophthalmologist and new member of the Keratoconus Self-Help and Support Group, shares her reflections from the 2025 Specialist Keratoconus & Scleral…
£2.4m funding to develop non-invasive treatment for keratoconus
University of Liverpool researchers receive £2.4 million to advance a minimally invasive treatment for keratoconus, aiming to improve patient access and reduce NHS costs Researchers at the University of Liverpool…
Specialist Keratoconus Symposium Review
By Peter Field HERTFORD UK, APRIL / MAY 2025 at The BEAM theatre complex There is something quite magical when you arrive at Hertford on a warm, sunny, sky blue…
NIHR grant awarded to Dr. Shafi Balal for community sourced AI-powered keratoconus research
The National Institute for Health and Care Research (NIHR) have awarded Dr. Shafi Balal a prestigious Doctoral Fellowship at University College London (UCL). The NIHR Doctoral Fellowship is a full-time award that…
Rethinking Workplace Adjustments: Gatekeepers, Power Trips, and the Subjectivity of ‘Reasonable’
By Daniel Morgan-Williams, Founding Director of Visualise Training and Consultancy Working in the workplace adjustment space, we see this quite often. An employee requests an adjustment to remove a barrier,…
Autumn Speaker Meeting Saturday 25th October 2025
Our autumn speaker meeting will be held at the Moorfields Education Hub 1st Floor 15 Ebenezer Street, N1 7NG (the hub is opposite the main hospital). Cross City Road and go up…
Strategies for Coping with KC
Keratoconus (KC) doesn’t just affect your vision – it can also impact your daily life and emotional well-being. Distorted eyesight from KC can interfere with tasks like reading, driving, or…
Dispensing Optics; Charity of the Month
ABDO have made us “Charity of the Month”. You can read their article here
Research update 3 shows promising results
At our AGM and Speaker meeting both Dr Abass and optometrist Lynn White, carefully explained the progress of their work to find a solution for those of us who have…
New Research Study
Investigator Initiated, Prospective Study of Xenia Corneal Lenticule This information is provided directly by researchers and we recognise that it isn’t always easy to understand. We are working with researchers…
Spectacles for KC Research update 2
We are pleased to report that Dr Ahmed Abass has published his paper which we are proud to have co-sponsored with Fight for Sight. Dr Abass has kindly provided the…
In Memoriam Mike Oliver
It is with great sadness that we announce the death of Mike Oliver, co-founder of the Keratoconus Group, long time trustee and ex Chair of the trustees. Mike’s contribution to…
Redesigning contact lenses for keratoconus
At our AGM we were treated to a talk by Emma McVeigh about a new project led by Dan Ehrlich (retired Head of Optometry at Moorfields). Moorfields is funding an…
DVLA publishes revised list of notifiable conditions list for drivers following AOP advice
As you can see from the Government website (Eye conditions and driving), Keratoconus has been removed from the list of notifiable conditons. This change was made after consultation with the…
Research update
University of Liverpool biomedical engineer, Dr. Ahmed Abass, had been awarded funding from Fight for Sight and Keratoconus Group UK to develop a new type of spectacle lens that can correct irregular astigmatism…
Contact lens tolerance
Recently a number of our members have experienced problems when supplied with new scleral contact lenses. Such was the concern that we asked members for feedback in our Spring 2022…
Virtual A & E Appointments
Moorfields have a new service to access it visit: https://www.moorfields.nhs.uk/service/accident-emergency Scroll down to this tab and follow the instructions:
Cornea Donation
At our November Coffee Morning, we were treated to a very thought-provoking talk from Tracy Long-Sutehall. Tracy has been very concerned by the shortage of available corneas for transplant surgery.…
Prof. Roger John Buckley
Sadly, our president passed away on Wednesday 12th October 2022 Mr Buckley has been a keen supporter of our charity. His involvement started in the first year of our inception…
Moorfields team develop ‘prediction calculator’ for keratoconus
A Moorfields and UCL Institute of Ophthalmology team led by Daniel Gore have developed a ‘prediction calculator’ to give keratoconus patients a personalised risk calculation to make informed decisions about…
Genetic Research
Members will remember the talk given by Professor Alison Hardcastle at our AGM in 2019, updating us on her work as part of the Genome-Wide Association Studies (GWAS). The talk…
Talk by Howard Maile
At our previous Zoom coffee morning, we were treated to an excellent talk by Howard Mailes, a PhD candidate at UCL. He was talking about his research into using artificial intelligence…
Implantable contact lenses
Following a few more than slightly disconcerting conversations about implantable contact lenses recently, Moorfields Ken Pullum has asked us to publish a paper clarifying the points to consider before undertaking…
Cross Linking in Wales
For the past few years our group has been working with health professionals in Wales where until now, apart from very exceptional cases, it has not been possible to have…
Corneal cross-linking is effective in treating young keratoconus patients
A clinical trial in 60 keratoconus patients aged 10-16 years old, most of which were based at the NIHR Clinical Research Facility at Moorfields Eye Hospital, found that a treatment for keratoconus,…
Genetic study uncovers hidden pieces of the keratoconus puzzle
Many of our members have been following this study. It has been carried out University College London (UCL), Moorfields, Kings College London and other national and international collaborators and is…
Sight and Sound Technology
We would like to thank Sight and Sound for hosting the following webinar for us specifically tailored towards keratoconus. The webinar looks at four scenarios taking people at different stages…
Coronavirus and working from home
Reflections from lockdown by Caroline Condillac Contemplating the new working environment from a Keratoconus perspective has been interesting Positives We are good at washing our hands and being resilient For…
Cross Linking Podcast
Keratoconus and cross-linking with Dr Vijay Anand MCOptom A good friend and supporter of our group Dr Vijay Anand was recently interviewed on the College of Optometrists’ podcast, about the…
Eye Rubbing
Eye Rubbing is believed to have a significant affect on the development of Keratoconus. This YouTube clip is interesting in that it suggests that adults need to avoid eye rubbing…
VI Talk Podcast
Our very own Mike Oliver was interviewed today by VI Talk for their podcast. Mike spoke for 17 minutes and hit all the necessary points to inform listeners about Keratoconus.…
Engineers to develop spectacle lenses for keratoconus patients
University of Liverpool biomedical engineer, Dr Ahmed Abass, has been awarded funding from Fight for Sight and Keratoconus Group UK to develop a new type of spectacle lens that can correct irregular astigmatism for keratoconus…
A New Website – Specialitysight
This is a great new website divided up into four sections: Patients Practitioners Anatomy of the Eye/FAQ Professionals and Industry Associations The navigation is well laid out and it is…
New research discovers possible alternative to antibiotics to treat corneal infections
A researcher from the University of Nottingham has discovered a possible alternative to traditional antibiotics for treating corneal infections. In his project, Fight for Sight funded researcher Dr Darren Ting…
The UK Cross-Linking Consortium
The UK Cross-linking Consortium was established in 2013 with funding from the Medical Research Council and is dedicated to the dissemination of information about keratoconus to ophthalmic surgeons, vision researchers…
Cornea donation myths dispelled
On World Sight Day (10 October), NHS Blood and Transplant needs to dispel five common myths around cornea donation and encourage people to give the gift of sight. One in…
Corneal Research in Wales
The Medical Research Council (MRC) has awarded Cardiff University’s School of Optometry and Vision Sciences a grant valued at £2.4 million for a large scale study on the cornea. The…
New study to help with shortage of eye donors
Researchers at the University of Southampton and clinical partners across England are leading a new project aimed at helping to tackle a shortfall in the number of people willing to…
Love Your Lenses
Lens hygiene and care is crucially important. To get the message across a new campaign has been launched and you can find out about it here. In addition Moorfields has…
The Sight Advice FAQ
The Sight Advice FAQ answers questions about living with sight loss, eye health or being newly diagnosed with a sight condition. This includes those who are supporting people through their…
Cornea Donation Shortfall Highlighted
Fight for Sight is working to raise awareness of the importance of eye donations after research has found that eyes are the organ that people would be the least likely…
How many people have keratoconus?
This is an interesting article published by the National Keratoconus Foundation in America: For many years, it’s been long stated that keratoconus occurs in one person in every 2,000. In an…
Visualise Resource Pack
Visualise is a charity that helps organisations find the answers that make their services more inclusive and accessible to people with a visual impairment and other disabilities. As leaders in…
Newcastle University 3D Print World’s First Human Corneas
The first human corneas have been 3D printed by scientists at Newcastle University. It means the technique could be used in the future to ensure an unlimited supply of corneas.…
Moorfields CXL Results
Moorfields have carried out 4,620 Corneal Collagen Crosslinking treatments and have recently published their results. View the results.
NICE Report on Cross Linking
This Report on photochemical corneal collagen cross-linkage using riboflavin and ultraviolet A for keratoconus and keratectasia was issued in September 2013. Read Full Report
The Keralink Study
While there have been a number of studies demonstrating the effectiveness of CXL in adults and the procedure has been approved by NICE for use in the NHS, much less…