Member Stories
My Keratoconus Journey – Nasirou Bah
How has it been living with keratoconus? The world is blurry. Very blurry. Words, faces, everything just seems out of focus and I walk around
17-Jul-2026
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Category: Member Stories
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Johnny Sloss Takes on the AJ Bell Great Scottish Run for Keratoconus Group
On 4th October, Johnny Sloss will be lacing up his running shoes and taking on the AJ Bell Great Scottish Run, all while raising funds
8-Jun-2026
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Member Stories
Having KC is not disastrous!
I am now 80 and was diagnosed with KC in 1978. Used hard contact lenses from 1965 (not gas permeable in those days) until right
29-Mar-2026
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Vital NHS Contact Lens Service for Keratoconus Patients Set to Close
UPDATE 1st April 2026: After a long and often frustrating journey, I’m incredibly relieved and grateful to say that the NHS contact lens service has
24-Feb-2026
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Member Stories
Keratoconus in my teens/twenties
Around the age of 15/16 I was diagnosed with keratoconus. I was a glasses wearer, but I was really struggling to see anything in much
18-Mar-2025
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Member Stories
Dale’s Story
Without and With Lenses Hi I’m Dale, I have Down syndrome, I’m autistic, I can be extremely challenging because the world doesn’t suit me very
26-Feb-2022
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Member Stories
Matti’s Story
“I have had suspicions that you might have Keratoconus in your left eye” In the early 1990s I went to see my optometrist back home
1-Feb-2022
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Member Stories
David’s CXL Story
In December 2020 I underwent cross linking at Birmingham Midland Eye Centre. The procedure was on both of my eyes and I had the operation
18-Feb-2021
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I am a parent of a Keratoconus sufferer
So I am a parent of a Keratoconus sufferer. Since she was diagnosed at 16 I have struggled to understand what my daughter goes through
14-Sep-2020
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The Man with the Funny Shaped Eyes
A while ago I wrote this, just really to get it off my mind and keep it down to look back on in the future,
16-Oct-2017
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