Living with keratoconus can sometimes feel isolating. Whether you’ve been recently diagnosed, are managing changes in your vision, or are supporting someone you care about, it helps to know you’re not alone.
That’s why we’re pleased to introduce our brand new WhatsApp Community — a dedicated space created by The Keratoconus Group to help people connect, share, and support one another.
A space built on understanding
Our community is designed to be welcoming, supportive, and respectful. It brings together people who understand keratoconus through lived experience, creating opportunities for meaningful connection and reassurance.
This isn’t about having all the answers — it’s about having a place where conversations feel safe, experiences are shared openly, and no one feels they have to navigate their journey alone.
Who is the community for?
- People living with keratoconus at any stage
- Those newly diagnosed and looking for reassurance
- Family members, friends, and carers wanting to better understand and support a loved one
No matter where you are on your journey, you’re welcome to join.
Why WhatsApp?
We chose WhatsApp because it’s simple, familiar, and easy to access. It allows our community to stay connected in real time, while still fitting around everyday life.
How to join
Joining is easy. Click here, and you’ll be guided straight into the community.
Or scan the QR code.

We’d love for you to be part of it.
Together, we’re stronger. 💙
The Keratoconus Group