Research update

University of Liverpool biomedical engineer, Dr. Ahmed Abass, had been awarded funding from Fight for Sight and Keratoconus Group UK to develop a new type of spectacle lens that can correct irregular astigmatism for keratoconus patients. Dr. Abass has now completed the trial and plans to publish his paper later this year and has agreed to present his…

Contact lens tolerance

Recently a number of our members have experienced problems when supplied with new scleral contact lenses. Such was the concern that we asked members for feedback in our Spring 2022 Newsletter. We recently hosted one of our occasional KC Coffee mornings and were fortunately joined by one of the leading optometrists in the Moorfields Contact…

Cornea Donation

At our November Coffee Morning, we were treated to a very thought-provoking talk from Tracy Long-Sutehall. Tracy has been very concerned by the shortage of available corneas for transplant surgery. She realised a major opportunity is being missed in hospice care due to the lack of consultation with family members. The talk was recorded and…

Prof. Roger John Buckley

Sadly, our president passed away on Wednesday 12th October 2022 Mr Buckley has been a keen supporter of our charity. His involvement started in the first year of our inception and his encouragement and involvement have helped us grow to where we are today. For many years he led the corneal service at Moorfields. His…

Genetic Research

Members will remember the talk given by Professor Alison Hardcastle at our AGM in 2019, updating us on her work as part of the Genome-Wide Association Studies (GWAS). The talk was summarised in our Summer 2019 newsletter. The authors from UCL Institute of Ophthalmology, Moorfields Eye Hospitaland many other institutions from around the world, have…

Dale’s Story

Without and With Lenses Hi I’m Dale, I have Down syndrome, I’m autistic, I can be extremely challenging because the world doesn’t suit me very well… and I have KC. I will be 40 this year. My abilities are at about a two-year level. I love planes trains rugby and You’ve Been Framed. When I…

Matti’s Story

“I have had suspicions that you might have Keratoconus in your left eye” In the early 1990s I went to see my optometrist back home in Finland for my annual check up. I had noticed that sometimes the correction with just glasses left my eyesight especially on the left side lacking in clarity and focus.…