UPDATE 1st April 2026: After a long and often frustrating journey, I’m incredibly relieved and grateful to say that the NHS contact lens service has now been reinstated. As many of you know, this isn’t just a service, it’s a lifeline for people living with keratoconus and other complex eye conditions. I’ve seen first-hand how…
We’re delighted to share some exciting news with our members and supporters: we have a runner in the 2026 London Marathon fundraising for the Keratoconus Group. New member Tosin Adebanjo recently contacted us after successfully securing a place through the marathon ballot and generously asked whether he could run in support of the Keratoconus Group.…
Living with keratoconus can sometimes feel isolating. Whether you’ve been recently diagnosed, are managing changes in your vision, or are supporting someone you care about, it helps to know you’re not alone. That’s why we’re pleased to introduce our brand new WhatsApp Community — a dedicated space created by The Keratoconus Group to help people…
The date for the next meeting is Thursday 30th April at 7.00pm Our drop-in Zoom chats provide a good opportunity for the newly diagnosed to meet seasoned travellers and discuss all things KC. Anyone interested in keratoconus is free to join us. To take part, simply send an e-mail to david@keratoconus-group.org.uk to request a link.
The next meeting will be on Thursday 26th March at 11am Venue – The Vision Sciences Building (co-located with Aston University Eye Clinic) Aston University Campus, Aston Street, Birmingham B4 7ET (NB Enter via Reception – not Student Entrance – First Floor, Room VS130) This will be a social gathering at a new venue for…
Keratoconus is often described as an invisible condition. From the outside, our eyes can look perfectly healthy, while the way we see the world is anything but. Explaining that experience to others can be incredibly difficult — how do you describe ghosting, halos, or smeared lights in a way that truly makes sense? That’s why…
Saturday 28th March at 11am Our AGM and guest speaker meeting is at the Moorfields Education Hub, Ist Floor, 15 Ebenezer Street, N1 7NP (the hub is opposite Moorfields main hospital – cross City Road and go up Provost Street to the next corner and the Hub is facing you on the left). Our guest speaker…
If you’re looking to learn more about the latest research and real-life experiences of keratoconus, KeraClub is a great place to start. Run by Keratoconus Australia, KeraClub is an online education series that brings together patients, clinicians and researchers from around the world. The recording of KeraClub 2025 is now available to watch, offering a…
Keratoconus is a progressive eye condition that can make everyday classroom tasks more challenging. With the right adjustments, students can continue to learn confidently and participate fully in school life. This guide outlines practical strategies that schools, colleges and teachers can use to create an inclusive learning environment for children and young people with Keratoconus.…
The holiday season is a time for celebration, travel, cosy evenings and bright decorations. For people living with keratoconus, this time of year can sometimes bring extra challenges. Cold weather, indoor heating, changes in routine and increased social events can all affect how your eyes feel. This guide offers simple and practical tips to help…